Investigation of the relationship between care burden and anxiety levels of terminal period patient relatives

Metin Yildiz 1 * , Yakup Sarpdaği 2, Mehmet Salih Yildirim 3, Güray Okyar 1
More Detail
1 Department of Nursing, School of Health, Agri Ibrahim Cecen University, Agri, Turkey
2 Public Health Nursing, Ataturk University, Erzurum, Turkey
3 Doğubayazıt Ahmed-i Hani Vocational School, Agri Ibrahim Cecen University, Agri, Turkey
* Corresponding Author
J CLIN MED KAZ, Volume 18, Issue 1, pp. 48-52. https://doi.org/10.23950/jcmk/9655
OPEN ACCESS 1899 Views 1681 Downloads
Download Full Text (PDF)

ABSTRACT

Objective: This research was carried out to examine the relationship between care burden and anxiety levels of terminal period patient relatives.
Material and Methods: This research, which is planned as descriptive-correlational type, was conducted between March and May 2020 in Van Training and Research Hospital.
Results: According to the findings obtained from the study, the Beck Anxiety Inventory total score mean of the individuals was determined to be 16.40 ± 13.12. The total score mean of the Zarit Care Burden Scale was determined to be 50.23 ± 11.29. A positive statistically significant relationship was found between Beck Anxiety Inventory and Zarit Care Burden Scale total score means (p <0.05).
Conclusion: Individuals have been found to have moderate anxiety and “severe burden”. Palliative care nurses should support the psychological and basic aspects of individuals with nursing interventions necessary for caregivers to cope with anxiety and feel less care burdens. It is recommended to carry out culture-specific programs and long-term clinical studies to ensure that caregivers are able to cope with anxiety.
Keywords: anxiety, care burden, terminal period

CITATION

Yildiz M, Sarpdaği Y, Yildirim MS, Okyar G. Investigation of the relationship between care burden and anxiety levels of terminal period patient relatives. J CLIN MED KAZ. 2021;18(1):48-52. https://doi.org/10.23950/jcmk/9655

REFERENCES

  • World Health Organization. WHO Definition of Palliative Care. 2002. http://www.who.int/cancer/palliative/definition/en/. Accessed Date: 03.04.2019.
  • Ferris FD, Gómez-Batiste X, Fürst CJ, Connor S. Implementing quality palliative care. Journal of pain and symptom management. 2007; 33(5):533-41. Doi:10.1016/j.jpainsymman.2007.02.033.
  • Reinhard SC, Given B, Petlick NH, Bemis A. Supporting family caregivers in providing care. Ed: Hughes RG, Patient Safety and Quality: An Evidence-Based Handbook for Nurses. AHRQ Publication, Rockville, USA; 2008. 1-64.
  • Kristjanson LJ, Aoun S. Palliative care for families: remembering the hidden patients. The Canadian Journal of Psychiatry. 2004; 49(6):359-65. Doi:10.1177/070674370404900604.
  • Sullivan AB, Miller D. Who is taking care of the caregiver?. Journal of patient experience. 2015; 2(1):7-12. Doi:10.1177/237437431500200103
  • Ringer T, Hazzan AA, Agarwal A, Mutsaers A, Papaioannou A. Relationship between family caregiver burden and physical frailty in older adults without dementia: a systematic review. Systematic reviews. 2017; 6(1):55. Doi:10.1186/s13643-017-0447-1
  • Iecovich E. Caregiving burden, community services, and quality of life of primary caregivers of frail elderly persons. Journal of Applied Gerontology. 2008; 27(3):309-30. Doi:10.1177/0733464808315289
  • Erdem M. Yaşlıya bakım verme. [in Turkish]. Anadolu Hemşirelik ve Sağlık Bilimleri Dergisi. 2005; 8(3):101-106.
  • Njoku GU. The impact of caring for seniors on the caregiver's stress level. Walden Universty, College of Health Sciences, Doctoral Study, Minneapolis 2015. https://pdfs.semanticscholar.org/bcb9/ff83ec308b6cb96d69989318efcdc694213b.pdf?_ga=2.83136340.396739371.1562837509-298843409.1562837509. (Accessed Date: 11.07.2019).
  • Judge KS, Bass DM, Snow AL, Wilson NL, Morgan R, Looman WJ, et al. Partners in dementia care: a care coordination intervention for individuals with dementia and their family caregivers. The Gerontologist. 2011; 51(2):261-72. Doi:10.1093/geront/gnq097.
  • Beck AT, Epstein N, Brown G, Steer RA. An inventory for measuring clinical anxiety: psychometric properties. Journal of consulting and clinical psychology. 1988; 56(6):893. Doi:10.1037/0022-006X.56.6.893
  • Ulusoy M, Şahin N, Erkman H. Turkish version of the Beck Anxiety Inventory: psychometric properties. Cognitive Psychotherapy Int Quaterly. 1998; 12:28-35.
  • Zarit SH, Reever KE, Bach-Peterson J. Relatives of the impaired elderly: correlates of feelings of burden. The gerontologist. 1980; 20(6):649-55. Doi:10.1093/geront/20.6.649.
  • İnci FH, Erdem M. Bakım verme yükü ölçeğinin türkçeye uyarlanması geçerlilik ve güvenilirliği. [in Turkish]. Atatürk Üniversitesi Hemşirelik Yüksekokulu Dergisi. 2008; 11(4):85-95.
  • Corp IB. IBM SPSS statistics for windows, version 22.0. Armonk, NY: IBM Corp. 2013.
  • Mancini J, Baumstarck‐Barrau K, Simeoni MC, Grob JJ, Michel G, Tarpin C, LOUNDOU AD, Lambert A, Clément A, Auquier P. Quality of life in a heterogeneous sample of caregivers of cancer patients: an in‐depth interview study. European Journal of Cancer Care. 2011; 20(4):483-92. Doi:10.1111/j.1365-2354.2010.01227.x
  • Toros F, Tot Ş, Düzovalı Ö. Kronik hastalığı olan çocuklar, anne ve babalarındaki depresyon ve anksiyete düzeyleri [in Turkish]. Klinik Psikiyatri. 2002; 5(4):240-7.
  • Chao CC, Chen SH, Wang CY, Wu YC, Yeh CH. Psychosocial adjustment among pediatric cancer patients and their parents. Psychiatry and clinical neurosciences. 2003; 57(1):75-81. Doi:10.1046/j.1440-1819.2003.01082.x
  • Amankwaa B. Informal caregiver stress. ABNF Journal. 2017; 28(4):92-5.
  • Arkın, S. Palyatif Bakım Hastalarına Bakım Verenlerde Anksiyete, Depresyon Ve Sosyal Destek Düzeylerinin İncelenmesi [in Turkish]. Tıpta Uzmanlık Tezi, Sağlık Bilimleri Üniversitesi - İzmir Tepecik Eğitim ve Araştırma Hastanesi, İzmir, 2017.
  • Sarıtaş SÇ, Büyükbayram Z. Kemoterapi alan hastaların ve bakım veren yakınlarının anksiyete düzeyleri ve etkileyen faktörler [in Turkish]. TAF Preventive Medicine Bulletin. 2016; 15(2).
  • Alacacıoğlu, A. Kanser hastaları ve hasta yakınlarının depresyon, umutsuzluk ve kaygı düzeylerinin değerlendirilmesi [in Turkish]. Doctoral dissertation, Dokuz Eylül Üniversitesi Tıp Fakültesi, 2007.
  • Johansen S, Cvancarova M, Ruland C. The effect of cancer patients’ and their family caregivers’ physical and emotional symptoms on caregiver burden. Cancer nursing. 2018; 41(2):91-9. Doi:10.1097/NCC.0000000000000493
  • Gröpper S, van der Meer E, Landes T, Bucher H, Stickel A, Goerling U. Assessing cancer-related distress in cancer patients and caregivers receiving outpatient psycho-oncological counseling. Supportive Care in Cancer. 2016; 24(5):2351-7. Doi:10.1007/s00520-015-3042-9
  • Karabulutlu, EY, Akyıl R, Karaman S, Karaca, M. Kanser hastalarına bakım verenlerin uyku kalitesi ve psikolojik sorunlarının incelenmesi [in Turkish]. Türk Onkoloji Dergisi. 2013; 28(1):1-9.
  • Tel H, Demirkol D, Kara S, Aydın D. KOAH'lı Hastaların Bakım Vericilerinde Bakım Yükü ve Yaşam Kalitesi [in Turkish]. Turk Toraks Dergisi/Turkish Thoracic Journal. 2012; 13(3). Doi:10.5152/ttd.2012.21
  • Orak OS, Sezgin S. Kanser Hastasına Bakım Veren Aile Bireylerinin Bakım Verme Yüklerinin Belirlenmesi [in Turkish]. Journal of Psychiatric Nursing/Psikiyatri Hemsireleri Dernegi. 2015; 6(1).
  • Özdemir FK, Şahin ZA, Küçük D. Kanserli çocuğu olan annelerin bakım verme yüklerinin belirlenmesi [in Turkish]. Yeni Tıp Dergisi. 2009; 26:153-158
  • Çapık, D. D. C. Epilepsili çocuğa sahip ebeveynlerin bakım yükü ve umutsuzluk düzeyinin incelenmesi [in Turkish]. Doctoral dissertation, 2018.
  • Ikeda T, Nagai T, Kato-Nishimura K, Mohri I, Taniike M. Sleep problems in physically disabled children and burden on caregivers. Brain and Development. 2012; 34(3):223-9. Doi:10.1016/j.braindev.2011.04.011.